1. How old are you? | |||
---|---|---|---|
answered question | 1,325 | ||
skipped question | 6 | ||
Response Percent |
Response Count |
||
Under 15 years old | 0.3% | 4 | |
15-20 |
|
0.2% | 2 |
20-25 |
|
0.5% | 7 |
25-30 |
|
1.7% | 23 |
30-35 |
|
4.8% | 63 |
35-40 |
|
7.8% | 104 |
40-45 |
|
23.1% | 306 |
45-50 |
|
22.6% | 299 |
50-55 |
|
20.8% | 275 |
55-60 |
|
11.4% | 151 |
Over 60 |
|
6.9% | 91 |
DownloadCreate Chart2. What is your ethinicity? | |||
---|---|---|---|
answered question | 1,325 | ||
skipped question | 6 | ||
Response Percent |
Response Count |
||
White |
|
78.4% | 1,039 |
Black |
|
7.7% | 102 |
Latino |
|
9.1% | 121 |
Asian |
|
1.7% | 22 |
American Indian |
|
0.8% | 10 |
Other |
|
2.3% | 31 |
DownloadCreate Chart3. What is your gender? | |||
---|---|---|---|
answered question | 1,325 | ||
skipped question | 6 | ||
Response Percent |
Response Count |
||
Female |
|
12.4% | 164 |
Male |
|
87.2% | 1,155 |
Transgender |
|
0.5% | 6 |
DownloadCreate Chart4. How long have you known that you are HIV positive? | |||
---|---|---|---|
answered question | 1,325 | ||
skipped question | 6 | ||
Response Percent |
Response Count |
||
Under 5 years |
|
10.1% | 134 |
5- 10 years |
|
14.1% | 187 |
10-15 years |
|
20.8% | 276 |
15-20 years |
|
27.7% | 367 |
over 20 years |
|
27.2% | 361 |
DownloadCreate Chart5. Are you currently taking HIV medications? | |||
---|---|---|---|
answered question | 1,325 | ||
skipped question | 6 | ||
Response Percent |
Response Count |
||
Yes |
|
94.9% | 1,258 |
No |
|
5.1% | 67 |
DownloadCreate Chart6. If you are taking or have taken medications for HIV, how long have you taken them (total years)? | |||
---|---|---|---|
answered question | 1,288 | ||
skipped question | 43 | ||
Response Percent |
Response Count |
||
Under 5 years |
|
15.0% | 193 |
5-10 years |
|
21.1% | 272 |
10-15 years |
|
35.3% | 455 |
15-20 years |
|
28.6% | 368 |
DownloadCreate Chart7. Have you taken any of these medications in the past? | |||
---|---|---|---|
answered question | 1,170 | ||
skipped question | 161 | ||
Response Percent |
Response Count |
||
Zerit (D4T) |
|
83.6% | 978 |
AZT |
|
78.7% | 921 |
Crixivan |
|
50.3% | 589 |
High dose Norvir |
|
37.1% | 434 |
Hydroxyurea |
|
11.2% | 131 |
DDI (videx) |
|
55.0% | 644 |
DDC (Hivid) |
|
29.4% | 344 |
DownloadCreate Chart8. Have you had body shape changes after starting HIV medications in the past? | |||
---|---|---|---|
answered question | 1,331 | ||
skipped question | 0 | ||
Response Percent |
Response Count |
||
Yes |
|
88.7% | 1,180 |
No |
|
11.3% | 151 |
DownloadCreate Chart9. What kind of body changes are you experiencing or have you experienced? | |||
---|---|---|---|
answered question | 1,296 | ||
skipped question | 35 | ||
Response Percent |
Response Count |
||
Involuntary weight loss/wasting |
|
45.8% | 594 |
Abdominal (Belly) Fat Gain |
|
61.9% | 802 |
Facial Wasting |
|
79.9% | 1,035 |
Butt Wasting |
|
70.3% | 911 |
Veiny Legs or Arms |
|
68.5% | 888 |
Increased Breast Size |
|
21.1% | 274 |
Buffalo Hump (Behind The Neck) |
|
20.9% | 271 |
Increased Neck Size |
|
16.4% | 213 |
Parotid Gland Enlargement (sides of face) |
|
15.7% | 203 |
Other |
|
6.4% | 83 |
106 |
DownloadCreate Chart10. Have you experienced depression or anxiety due to the body changes? | |||
---|---|---|---|
answered question | 1,331 | ||
skipped question | 0 | ||
Response Percent |
Response Count |
||
Yes |
|
88.4% | 1,177 |
No |
|
11.6% | 154 |
DownloadCreate Chart11. Have you ever thought of killing yourself due to your body changes? | |||
---|---|---|---|
answered question | 1,331 | ||
skipped question | 0 | ||
Response Percent |
Response Count |
||
Yes |
|
26.3% | 350 |
No |
|
73.7% | 981 |
DownloadCreate Chart12. Have you ever thought about not taking your HIV medications or have you ever stopped taking them because of fear of worsening your body changes? | |||
---|---|---|---|
answered question | 1,331 | ||
skipped question | 0 | ||
Response Percent |
Response Count |
||
Yes |
|
42.4% | 564 |
No |
|
57.6% | 767 |
DownloadCreate Chart13. Have the body changes cause you to: (check all that apply) | |||
---|---|---|---|
answered question | 1,256 | ||
skipped question | 75 | ||
Response Percent |
Response Count |
||
Stop socializing and going out to meet people |
|
67.4% | 847 |
Stop dating |
|
51.8% | 651 |
Decrease sexual activity |
|
73.9% | 928 |
Increase sexual activity |
|
3.9% | 49 |
Worry too much about people finding out you are HIV+ |
|
61.2% | 769 |
Be rejected by potential sexual partners |
|
56.0% | 703 |
Affect your job performance |
|
27.4% | 344 |
Stop looking at yourself in the mirror |
|
58.0% | 729 |
Change your clothing style |
|
56.0% | 703 |
Abuse drugs or alcohol to feel better |
|
18.2% | 228 |
Deplete your finances in search of a solution |
|
29.2% | 367 |
Other |
|
6.7% | 84 |
112 |
DownloadCreate Chart14. What have you done to try to reverse your body changes? (check all that apply) | |||
---|---|---|---|
answered question | 1,242 | ||
skipped question | 89 | ||
Response Percent |
Response Count |
||
Exercised more |
|
72.6% | 902 |
Watch what I eat |
|
72.4% | 899 |
Got my face injected with a filler or cosmetic product |
|
40.7% | 505 |
Got my parotid glands treated with radiation |
|
1.4% | 18 |
Took supplements that I heard may help my body fat/muscle |
|
43.0% | 534 |
Used testosterone |
|
45.0% | 559 |
Used human growth hormone |
|
17.1% | 212 |
Used nandrolone (Deca durabolin) |
|
16.1% | 200 |
Used Oxandrin |
|
13.8% | 171 |
Got liposuction |
|
7.2% | 90 |
Got butt implants |
|
1.7% | 21 |
Use padded underwear |
|
13.3% | 165 |
Other |
|
6.6% | 82 |
118 |
DownloadCreate Chart15. Have your insurance, ADAP/Ryan White clinic, HMO, health care system (for countries outside the US) and/or supplier patient assistance program paid for ANY of the solution(s) mentioned in the answer(s) in the previous question? (Check all that apply) | |||
---|---|---|---|
answered question | 1,124 | ||
skipped question | 207 | ||
Response Percent |
Response Count |
||
No one has. I had to pay with my own money |
|
63.2% | 710 |
Yes, my insurance company has |
|
17.7% | 199 |
Yes, my HMO has |
|
4.7% | 53 |
Yes, my ADAP/Ryan White program has |
|
6.9% | 78 |
Yes, my country’s health system has |
|
7.9% | 89 |
Yes, a supplier’s patient assistance program has |
|
11.1% | 125 |
279 |
DownloadCreate Chart16. Have you had facial wasting (lipoatrophy)? | |||
---|---|---|---|
answered question | 1,330 | ||
skipped question | 1 | ||
Response Percent |
Response Count |
||
Yes |
|
80.3% | 1,068 |
No |
|
19.7% | 262 |
DownloadCreate Chart17. What option have you used to improve your facial lipoatrophy? (check all that apply) | |||
---|---|---|---|
answered question | 1,144 | ||
skipped question | 187 | ||
Response Percent |
Response Count |
||
I have done nothing |
|
41.3% | 472 |
I have used BioAlcamid |
|
7.1% | 81 |
I have used silicone |
|
6.8% | 78 |
I have used Sculptra (New Fill or polylactic acid) |
|
29.6% | 339 |
I have used Radiesse |
|
5.2% | 60 |
I have used PMMA in Rio, Tijuana or other |
|
4.4% | 50 |
I have switched off from Zerit to Viread, Ziagen, Epzicom or Truvada |
|
31.0% | 355 |
I have switched off from AZT to Viread, Ziagen, Epzicom, or Truvada |
|
12.3% | 141 |
I have taken Uridine (Nucleomaxx) |
|
1.1% | 13 |
Other |
|
8.4% | 96 |
157 |
PAGE:Â PAGE 2
DownloadCreate Chart18. Do you have or have you had high cholesterol/triglycerides? | |||
---|---|---|---|
answered question | 1,297 | ||
skipped question | 34 | ||
Response Percent |
Response Count |
||
Yes |
|
65.8% | 853 |
No |
|
28.0% | 363 |
I do not know |
|
6.2% | 81 |
DownloadCreate Chart19. Have you had or do you have higher than normal blood glucose (sugar)? | |||
---|---|---|---|
answered question | 1,297 | ||
skipped question | 34 | ||
Response Percent |
Response Count |
||
Yes |
|
27.4% | 356 |
No |
|
58.7% | 761 |
I do not know |
|
13.9% | 180 |
DownloadCreate Chart20. Have you heard from your doctor or other sources that belly fat, high LDL (bad) cholesterol, high triglycerides or high blood sugar may affect your health and mortality? | |||
---|---|---|---|
answered question | 1,297 | ||
skipped question | 34 | ||
Response Percent |
Response Count |
||
Yes |
|
75.5% | 979 |
No |
|
19.8% | 257 |
I do not remember |
|
4.7% | 61 |
DownloadCreate Chart21. Do you think some HIV medications can increase belly fat? | |||
---|---|---|---|
answered question | 1,296 | ||
skipped question | 35 | ||
Response Percent |
Response Count |
||
Yes |
|
81.8% | 1,060 |
No |
|
0.6% | 8 |
Not sure |
|
15.6% | 202 |
I think HIV causes it, not the medications |
|
2.0% | 26 |
DownloadCreate Chart22. Do you think some HIV medications can increase fat loss under the skin (facial wasting, veiny legs/arms, fat loss in the butt)? | |||
---|---|---|---|
answered question | 1,296 | ||
skipped question | 35 | ||
Response Percent |
Response Count |
||
Yes |
|
88.8% | 1,151 |
No |
|
0.8% | 11 |
Not sure |
|
6.9% | 89 |
I think HIV causes it, not the medications |
|
3.5% | 45 |
Download23. What do you want me to tell or ask lipodystrophy researchers about what the research needs are for that problem? | ||
---|---|---|
answered question | 690 | |
skipped question | 641 | |
Response Count |
||
690 |