1. How old are you? | |||
---|---|---|---|
answered question | 1,325 | ||
skipped question | 6 | ||
Response Percent |
Response Count |
||
Under 15 years old |
|
0.3% | 4 |
15-20 |
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0.2% | 2 |
20-25 |
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0.5% | 7 |
25-30 |
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1.7% | 23 |
30-35 |
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4.8% | 63 |
35-40 |
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7.8% | 104 |
40-45 |
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23.1% | 306 |
45-50 |
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22.6% | 299 |
50-55 |
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20.8% | 275 |
55-60 |
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11.4% | 151 |
Over 60 |
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6.9% | 91 |
DownloadCreate Chart2. What is your ethinicity? | |||
---|---|---|---|
answered question | 1,325 | ||
skipped question | 6 | ||
Response Percent |
Response Count |
||
White |
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78.4% | 1,039 |
Black |
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7.7% | 102 |
Latino |
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9.1% | 121 |
Asian |
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1.7% | 22 |
American Indian |
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0.8% | 10 |
Other |
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2.3% | 31 |
DownloadCreate Chart3. What is your gender? | |||
---|---|---|---|
answered question | 1,325 | ||
skipped question | 6 | ||
Response Percent |
Response Count |
||
Female |
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12.4% | 164 |
Male |
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87.2% | 1,155 |
Transgender |
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0.5% | 6 |
DownloadCreate Chart4. How long have you known that you are HIV positive? | |||
---|---|---|---|
answered question | 1,325 | ||
skipped question | 6 | ||
Response Percent |
Response Count |
||
Under 5 years |
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10.1% | 134 |
5- 10 years |
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14.1% | 187 |
10-15 years |
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20.8% | 276 |
15-20 years |
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27.7% | 367 |
over 20 years |
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27.2% | 361 |
DownloadCreate Chart5. Are you currently taking HIV medications? | |||
---|---|---|---|
answered question | 1,325 | ||
skipped question | 6 | ||
Response Percent |
Response Count |
||
Yes |
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94.9% | 1,258 |
No |
![]() |
5.1% | 67 |
DownloadCreate Chart6. If you are taking or have taken medications for HIV, how long have you taken them (total years)? | |||
---|---|---|---|
answered question | 1,288 | ||
skipped question | 43 | ||
Response Percent |
Response Count |
||
Under 5 years |
![]() |
15.0% | 193 |
5-10 years |
![]() |
21.1% | 272 |
10-15 years |
![]() |
35.3% | 455 |
15-20 years |
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28.6% | 368 |
DownloadCreate Chart7. Have you taken any of these medications in the past? | |||
---|---|---|---|
answered question | 1,170 | ||
skipped question | 161 | ||
Response Percent |
Response Count |
||
Zerit (D4T) |
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83.6% | 978 |
AZT |
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78.7% | 921 |
Crixivan |
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50.3% | 589 |
High dose Norvir |
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37.1% | 434 |
Hydroxyurea |
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11.2% | 131 |
DDI (videx) |
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55.0% | 644 |
DDC (Hivid) |
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29.4% | 344 |
DownloadCreate Chart8. Have you had body shape changes after starting HIV medications in the past? | |||
---|---|---|---|
answered question | 1,331 | ||
skipped question | 0 | ||
Response Percent |
Response Count |
||
Yes |
![]() |
88.7% | 1,180 |
No |
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11.3% | 151 |
DownloadCreate Chart9. What kind of body changes are you experiencing or have you experienced? | |||
---|---|---|---|
answered question | 1,296 | ||
skipped question | 35 | ||
Response Percent |
Response Count |
||
Involuntary weight loss/wasting |
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45.8% | 594 |
Abdominal (Belly) Fat Gain |
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61.9% | 802 |
Facial Wasting |
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79.9% | 1,035 |
Butt Wasting |
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70.3% | 911 |
Veiny Legs or Arms |
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68.5% | 888 |
Increased Breast Size |
![]() |
21.1% | 274 |
Buffalo Hump (Behind The Neck) |
![]() |
20.9% | 271 |
Increased Neck Size |
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16.4% | 213 |
Parotid Gland Enlargement (sides of face) |
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15.7% | 203 |
Other |
![]() |
6.4% | 83 |
![]() |
106 |
DownloadCreate Chart10. Have you experienced depression or anxiety due to the body changes? | |||
---|---|---|---|
answered question | 1,331 | ||
skipped question | 0 | ||
Response Percent |
Response Count |
||
Yes |
![]() |
88.4% | 1,177 |
No |
![]() |
11.6% | 154 |
DownloadCreate Chart11. Have you ever thought of killing yourself due to your body changes? | |||
---|---|---|---|
answered question | 1,331 | ||
skipped question | 0 | ||
Response Percent |
Response Count |
||
Yes |
![]() |
26.3% | 350 |
No |
![]() |
73.7% | 981 |
DownloadCreate Chart12. Have you ever thought about not taking your HIV medications or have you ever stopped taking them because of fear of worsening your body changes? | |||
---|---|---|---|
answered question | 1,331 | ||
skipped question | 0 | ||
Response Percent |
Response Count |
||
Yes |
![]() |
42.4% | 564 |
No |
![]() |
57.6% | 767 |
DownloadCreate Chart13. Have the body changes cause you to: (check all that apply) | |||
---|---|---|---|
answered question | 1,256 | ||
skipped question | 75 | ||
Response Percent |
Response Count |
||
Stop socializing and going out to meet people |
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67.4% | 847 |
Stop dating |
![]() |
51.8% | 651 |
Decrease sexual activity |
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73.9% | 928 |
Increase sexual activity |
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3.9% | 49 |
Worry too much about people finding out you are HIV+ |
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61.2% | 769 |
Be rejected by potential sexual partners |
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56.0% | 703 |
Affect your job performance |
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27.4% | 344 |
Stop looking at yourself in the mirror |
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58.0% | 729 |
Change your clothing style |
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56.0% | 703 |
Abuse drugs or alcohol to feel better |
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18.2% | 228 |
Deplete your finances in search of a solution |
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29.2% | 367 |
Other |
![]() |
6.7% | 84 |
![]() |
112 |
DownloadCreate Chart14. What have you done to try to reverse your body changes? (check all that apply) | |||
---|---|---|---|
answered question | 1,242 | ||
skipped question | 89 | ||
Response Percent |
Response Count |
||
Exercised more |
![]() |
72.6% | 902 |
Watch what I eat |
![]() |
72.4% | 899 |
Got my face injected with a filler or cosmetic product |
![]() |
40.7% | 505 |
Got my parotid glands treated with radiation |
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1.4% | 18 |
Took supplements that I heard may help my body fat/muscle |
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43.0% | 534 |
Used testosterone |
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45.0% | 559 |
Used human growth hormone |
![]() |
17.1% | 212 |
Used nandrolone (Deca durabolin) |
![]() |
16.1% | 200 |
Used Oxandrin |
![]() |
13.8% | 171 |
Got liposuction |
![]() |
7.2% | 90 |
Got butt implants |
![]() |
1.7% | 21 |
Use padded underwear |
![]() |
13.3% | 165 |
Other |
![]() |
6.6% | 82 |
![]() |
118 |
DownloadCreate Chart15. Have your insurance, ADAP/Ryan White clinic, HMO, health care system (for countries outside the US) and/or supplier patient assistance program paid for ANY of the solution(s) mentioned in the answer(s) in the previous question? (Check all that apply) | |||
---|---|---|---|
answered question | 1,124 | ||
skipped question | 207 | ||
Response Percent |
Response Count |
||
No one has. I had to pay with my own money |
![]() |
63.2% | 710 |
Yes, my insurance company has |
![]() |
17.7% | 199 |
Yes, my HMO has |
![]() |
4.7% | 53 |
Yes, my ADAP/Ryan White program has |
![]() |
6.9% | 78 |
Yes, my country’s health system has |
![]() |
7.9% | 89 |
Yes, a supplier’s patient assistance program has |
![]() |
11.1% | 125 |
![]() |
279 |
DownloadCreate Chart16. Have you had facial wasting (lipoatrophy)? | |||
---|---|---|---|
answered question | 1,330 | ||
skipped question | 1 | ||
Response Percent |
Response Count |
||
Yes |
![]() |
80.3% | 1,068 |
No |
![]() |
19.7% | 262 |
DownloadCreate Chart17. What option have you used to improve your facial lipoatrophy? (check all that apply) | |||
---|---|---|---|
answered question | 1,144 | ||
skipped question | 187 | ||
Response Percent |
Response Count |
||
I have done nothing |
![]() |
41.3% | 472 |
I have used BioAlcamid |
![]() |
7.1% | 81 |
I have used silicone |
![]() |
6.8% | 78 |
I have used Sculptra (New Fill or polylactic acid) |
![]() |
29.6% | 339 |
I have used Radiesse |
![]() |
5.2% | 60 |
I have used PMMA in Rio, Tijuana or other |
![]() |
4.4% | 50 |
I have switched off from Zerit to Viread, Ziagen, Epzicom or Truvada |
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31.0% | 355 |
I have switched off from AZT to Viread, Ziagen, Epzicom, or Truvada |
![]() |
12.3% | 141 |
I have taken Uridine (Nucleomaxx) |
![]() |
1.1% | 13 |
Other |
![]() |
8.4% | 96 |
![]() |
157 |
PAGE:Â PAGE 2
DownloadCreate Chart18. Do you have or have you had high cholesterol/triglycerides? | |||
---|---|---|---|
answered question | 1,297 | ||
skipped question | 34 | ||
Response Percent |
Response Count |
||
Yes |
![]() |
65.8% | 853 |
No |
![]() |
28.0% | 363 |
I do not know |
![]() |
6.2% | 81 |
DownloadCreate Chart19. Have you had or do you have higher than normal blood glucose (sugar)? | |||
---|---|---|---|
answered question | 1,297 | ||
skipped question | 34 | ||
Response Percent |
Response Count |
||
Yes |
![]() |
27.4% | 356 |
No |
![]() |
58.7% | 761 |
I do not know |
![]() |
13.9% | 180 |
DownloadCreate Chart20. Have you heard from your doctor or other sources that belly fat, high LDL (bad) cholesterol, high triglycerides or high blood sugar may affect your health and mortality? | |||
---|---|---|---|
answered question | 1,297 | ||
skipped question | 34 | ||
Response Percent |
Response Count |
||
Yes |
![]() |
75.5% | 979 |
No |
![]() |
19.8% | 257 |
I do not remember |
![]() |
4.7% | 61 |
DownloadCreate Chart21. Do you think some HIV medications can increase belly fat? | |||
---|---|---|---|
answered question | 1,296 | ||
skipped question | 35 | ||
Response Percent |
Response Count |
||
Yes |
![]() |
81.8% | 1,060 |
No |
![]() |
0.6% | 8 |
Not sure |
![]() |
15.6% | 202 |
I think HIV causes it, not the medications |
![]() |
2.0% | 26 |
DownloadCreate Chart22. Do you think some HIV medications can increase fat loss under the skin (facial wasting, veiny legs/arms, fat loss in the butt)? | |||
---|---|---|---|
answered question | 1,296 | ||
skipped question | 35 | ||
Response Percent |
Response Count |
||
Yes |
![]() |
88.8% | 1,151 |
No |
![]() |
0.8% | 11 |
Not sure |
![]() |
6.9% | 89 |
I think HIV causes it, not the medications |
![]() |
3.5% | 45 |
Download23. What do you want me to tell or ask lipodystrophy researchers about what the research needs are for that problem? | ||
---|---|---|
answered question | 690 | |
skipped question | 641 | |
Response Count |
||
![]() |
690 |